tag:blogger.com,1999:blog-6992467731938114021.post8006992971887578899..comments2024-03-13T02:37:42.316-05:00Comments on Carri Us Home: ConfirmedEmilyhttp://www.blogger.com/profile/08225398296015153064noreply@blogger.comBlogger6125tag:blogger.com,1999:blog-6992467731938114021.post-85203578114915792162014-09-10T15:46:52.728-05:002014-09-10T15:46:52.728-05:00Thank you! That is very reassuring what your genet...Thank you! That is very reassuring what your genetic counselor told you and thank you for passing that along to me! I do hope that your children and parents do not carry it, and I will send tons of positive thoughts your way! I hate that we have this, but at least we can surround ourselves with a team of doctors to keep an eye out! Please keep me posted on what's going on! If you have any questions don't hesitate to ask me! ( ecarriveau@yahoo.com ) <br /><br />Emily CEmilyhttps://www.blogger.com/profile/08225398296015153064noreply@blogger.comtag:blogger.com,1999:blog-6992467731938114021.post-55008932358263299212014-09-09T20:18:37.108-05:002014-09-09T20:18:37.108-05:00Katerine! I hope things are going well for you?! ...Katerine! I hope things are going well for you?! I was devastating, and not for how it affects me, but that I potentially passed this to my embryos. I know there is nothing I could have done to prevent this, but it does suck and hopefully someday they will find a way to fix genetic mutations (that will probably happen around the time they find a cure for cancer). Or maybe the cure is to figure out how to fix genetic mutations? I truly do appreciate your support, and you as well I am here to support you in whatever way I can too!<br /><br />Hugs, survivor!<br /><br />Em CEmilyhttps://www.blogger.com/profile/08225398296015153064noreply@blogger.comtag:blogger.com,1999:blog-6992467731938114021.post-80985984451607732252014-09-09T20:16:04.730-05:002014-09-09T20:16:04.730-05:00Thank you! I do know SO much more, and although it...Thank you! I do know SO much more, and although it is scary I will not have a blind eye to my health now. I am looking for support groups, and tried to join one but they still haven't accepted my request. Like with anything, only time will tell!<br /><br />Thanks<br />Emilyhttps://www.blogger.com/profile/08225398296015153064noreply@blogger.comtag:blogger.com,1999:blog-6992467731938114021.post-79850323978603215422014-09-04T11:31:02.886-05:002014-09-04T11:31:02.886-05:00Hi Emily, I came across your blog from google. I w...Hi Emily, I came across your blog from google. I want you to know you're not alone. On Nov 1st13 I was diagnosed with breast cancer. On August 28th 2014 I found out I have Li-Fraumeni as well. I believe the same as you there are probably many more people out there who just haven't been tested. My parents haven't been tested yet but will. I have 2 boys aged 1 & 4 they will be tested as well. I had the same reaction as you. I could handle it just being me but the fact my boys could have this has been really hard. But my genetic counselor said she has patients with Li-Fraumeni who are in the 40s, 50s even an 80 year old who have never had cancer. <br />If you ever want to talk my email is lisa_mitchell13@hotmail.caAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-6992467731938114021.post-78469045081368564832014-09-04T10:41:12.147-05:002014-09-04T10:41:12.147-05:00Emily,
you did the right thing and checked again....Emily,<br /><br />you did the right thing and checked again. You now know so much more than before, so much more in control than you could have been without this knowledge.<br /><br />It is not the best news in the world. Far from it.<br /><br />Like Katerine said, it would be great to find out others who share the same diagnoses. It's hard, but they are all probably looking for the same thing.<br /><br />Take care...CareAcrosshttps://www.careacross.comnoreply@blogger.comtag:blogger.com,1999:blog-6992467731938114021.post-33535097326145010122014-09-02T16:28:51.203-05:002014-09-02T16:28:51.203-05:00Emily, what dreadful news...:( You must be devast...Emily, what dreadful news...:( You must be devastated. I'm so, so sorry. I cannot believe this is happening to you. I was hoping with you that the initial results would be wrong. <br />How kind and thoughtful you are to thank your husband in your blog at a time like this, when I'm sure you are terribly upset. This goes to show what a lovely person you are and how totally undeserved all this bullshit is. <br /><br />Don't forget, scientists are making huge leaps forward all the time. For breast cancer alone the therapies have improved SO MUCH in a mere few years and more and more women get cured and survive. Is there a way you can get in touch with the other people who have been diagnosed with Li-Fraumeni? Again, how utterly bizarre and random that this should happen to you... I'm shocked.<br /><br />Whatever happens, I'm here to support you in whatever way I can. Katerinehttps://www.blogger.com/profile/12506061144502728314noreply@blogger.com